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Newsletter #5

Click here for the Spring 2022 newsletter

Final stage of data transition from old platform to Castor edc.

All research data is being transferred to the new Castor data platform. All contributors will recieve an email with more information and login credentials for your personal account to access the Castor data platform when the transition is finalised. All future research data will be collected by use of Castor (https://data.castoredc.com/).Please sent an e-mail to info@carotidaneurysmregistry.com if you have any questions.

Recent scientific publications

van Laarhoven CJHCM, Rots ML, Pourier VEC, Jorritsma NKN, Leiner T, Hendrikse J, Vergouwen MDI, de Borst GJ. Gadolinium enhancementof the aneurysm wall in extracranial carotid artery aneurysms. AJNR 2020.

van Laarhoven CJHCM, Pourier VEC, Lindgren AE, Vergouwen MDI, Jääskelaïnen JE, Rinkel GJE, de Kleijn DPV, de Borst GJ. Co-prevalence of extracranial carotid aneurysms differs between European intracranial aneurysms cohorts. PLoS One 2020.

de Vries EE, van Laarhoven CJHCM, Kuijf HJ, Hazenberg CEVB, van Herwaarden JA, Viergever MA, de Borst GJ. Volumetric assessment of extracranial carotid artery aneurysms. Sci Rep 2019.

Transition from old to new data platform

The research protocol of the Carotid Aneurysm Registry is updated to fulfill current privacy legislation. The Medical Ethics Committee of the UMC Utrecht has approved the updated protocol. The most important update is that future research data will be collected by use of the Castor data platform.

The updated registry protocol should be assessed by a local medical ethics committee.

Please e-mail info@carotidaneurysmregistry.com for more information concerning local medical ethics assessment and your personal account to access the Castor data platform.

Currently, all research data is being transferred to the new Castor data platform.
All future research data will be collected by use of Castor (https://data.castoredc.com/).

National Center of Expertise for Extracranial carotid artery aneurysms

The department of Vascular Surgery of the University Medical Center Utrecht is declared as first National Center of Expertise for extracranial carotid artery aneurysms.

A special thanks to all participating patients and centers world-wide, our knowledge concerning this rare pathology is increasing continuously!

Newsletter #4
June 2019. Please click here for the fourth newsletter.

Recent scientific publications

de Vries EE, Pourier VEC, van Laarhoven CJHCM, Vonken EJ, van Herwaarden JA, de Borst GJ, Comparability of semiautomatic tortuosity measurements in the carotid artery. Neuradiology 2018.

Pourier VEC, van Laarhoven CJHCM, Vergouwen MDI, Rinkel GJE, de Borst GJ. Prevalence of extracranial carotid artery aneurysms in patients with an intracranial aneurysm, PLoS One 2017.

Pourier VEC, Welleweerd JC, Kappelle LJ, Rinkel GJE, Ruigrok YM, van der Worp HB, Lo TH, Bots ML, Moll FL, de Borst GJ. Experience of a single center in the conservative approah of 20 consecutive cases of asymptomatic extracranial carotid artery aneurysms. Eur J Neurol 2018.

Welleweerd JC, Bots ML, Kappelle LJ, Rinkel GJ, Ruigrok YM, Baas AF, van der WOorp HB, Vergouwen MD, Bleys RL, Hendrikse J, Lo TR, Moll FL, de Borst GJ, Rationale and design of extracranial Carotid artery Aneurysm Registry (CAR). J Cardiovasc Surg 2018

Newsletter #3
October 2018. Please click here for the third newsletter.